nucchi

I saw this article on Huffington Post and HAD to repost it – AWESOME, it’s like he’s been in my brain!

Today my baby, my first born, my princess, turned 5 years old.  5 Years! Thats crazyiness! It seems like we brought her home just yesterday. Hell, it seems like just yesterday when she was sick at Children’s hospital, with fears of cancer in our midst.

Jianna @ Childrens Hospital, August 2007

Just this past week we started back to school shopping as she’s starting Kindergarten in the fall.  Not your old school, half day, am or pm kindergarten, oh no.  She’s going full day baby! She’ll have art class and music class, gym, and will even get to eat lunch at school this year!

I’m so proud of her. I am sad to see her leave her toddler years, but excited to see what she’ll become.

today was the second day in a row where I caught Mason licking the dew off my car. yuck.

Monkey turned 1 on saturday.  We had a big bash for him (or maybe it was more for us – tee hee).  It was hot as hell outside, we had a bouncy castle for the kids and a keg for the adults

Highlights – Monkey did great with the cake

Monkey enjoying his cake

Auntie RoRo drank humingbird juice… yuck…

a year ago today, in the midst of trying to find out what is wrong with j-bo, the doctors have come to a scary diagnosis.  While they still needed to do a test to confirm, could she possibly have…

leukemia?

the word, one word, turned our world upside down.  luckily j-bo was out of the room, in the play room with grandma and grandpa. i bawled for i don’t know how long.  my precious daughter, my perfect daughter, how could this be? how could this happen to my family?

Once the doctors had gone, after hubby and I tried to comfort each other, wiping each others tears… as soon as she came in the room, I held her.  I couldn’t let go. 

How could a child who had NEVER been sick (sure, the occasional cold- she had roseola once, but nothing more!) be admitted to a hospital with possibly LEUKEMIA? how could god put this on us with no warning?

That was the first night I went home. hubby stayed and my sister picked me up from the hospital. she dropped me off at home so I could take a long shower, pack even more things so I could return to the hospital for the evening.  I made some calls, told my family of this ‘possible’ diagnosis.  my dad picked me up a short while later and took me back to the hospital (no one was willing to let me drive in my current state.)

hubby and I spend the night together next to our beautifully perfect daughter.  we held each other as we both thought silently about our daughter and what was to become of our family.

I heard this song on a telethon a few months back.  They had it playing in the background while mothers of children battling illnesses told their stories.  I remember that day well – I listened in my car, in the parking lot of my work and I bawled my eyes out.  To this day, I love this song and play it whenever I need a good cry.

Fix You by Cold Play

When you try your best, but you don’t succeed
When you get what you want, but not what you need
When you feel so tired, but you can’t sleep
Stuck in reverse

When the tears come streaming down on your face
When you lose something you can’t replace
When you love someone, but it goes to waste
Could it be worse?

Lights will guide you home
And ignite your bones
And I will try to fix you

High up above or down below
When you’re too in love to let it go
If you never try you’ll never know
Just what you’re worth

Lights will guide you home
And ignite your bones
And I will try to fix you

Tears stream down on your face
When you lose something you cannot replace
Tears stream down on your face
And I…

Tears stream down on your face
I promise you I will learn from my mistakes
Tears stream down your face
And I…

Lights will guide you home
And ignite your bones
And I will try to fix you

She couldn’t walk.  Her eye(s) were nearly swollen shut.  She was not herself.

her third birthday - no, she's not stoned...

J-bo later in the day

did I mention I was 8.5 months pregnant at the time?

The day before her admission to Children’s hospital, J-bo was not herself.  she would not walk, and claimed that any weight put on her left leg hurt.  Her eye was swollen again, and she was crying a lot.  When we woke up (a year ago today) I called her pediatrician and we got in asap.  It seems like we were there forever, but eventually they decided that Children’s Hospital was the way to go.  At this point, we had been to the doctors maybe 8 times in the previous month, presenting with SO MANY differnet symptoms and no one had a clue.  The doctor was afraid that we were missing something, that maybe she had something more serious.

 

For the next several days, J-bo would undergo x-rays, have her blood drawn far too often, see specialist after specialist.  She saw ortho, she saw infectious disease. She saw hematology and oncology…

I would stay with her the whole time, even in my largeness, sleeping on the window seat next to my daughter.  My husband would lose his job over this, even if only for a month or two…(stupid cock sucker of a boss…)

Our world would turn upside down.  Our fate unknown…

 

 

I’ve seen this story posted on two different blogs I frequent (shout out to Dooce and Que Sera Sara), so I felt compelled to share it too.  Before you read it, prepare to get really angry and have a good cry…