nucchi

a year ago today, in the midst of trying to find out what is wrong with j-bo, the doctors have come to a scary diagnosis.  While they still needed to do a test to confirm, could she possibly have…

leukemia?

the word, one word, turned our world upside down.  luckily j-bo was out of the room, in the play room with grandma and grandpa. i bawled for i don’t know how long.  my precious daughter, my perfect daughter, how could this be? how could this happen to my family?

Once the doctors had gone, after hubby and I tried to comfort each other, wiping each others tears… as soon as she came in the room, I held her.  I couldn’t let go. 

How could a child who had NEVER been sick (sure, the occasional cold- she had roseola once, but nothing more!) be admitted to a hospital with possibly LEUKEMIA? how could god put this on us with no warning?

That was the first night I went home. hubby stayed and my sister picked me up from the hospital. she dropped me off at home so I could take a long shower, pack even more things so I could return to the hospital for the evening.  I made some calls, told my family of this ‘possible’ diagnosis.  my dad picked me up a short while later and took me back to the hospital (no one was willing to let me drive in my current state.)

hubby and I spend the night together next to our beautifully perfect daughter.  we held each other as we both thought silently about our daughter and what was to become of our family.

She couldn’t walk.  Her eye(s) were nearly swollen shut.  She was not herself.

her third birthday - no, she's not stoned...

J-bo later in the day

did I mention I was 8.5 months pregnant at the time?

The day before her admission to Children’s hospital, J-bo was not herself.  she would not walk, and claimed that any weight put on her left leg hurt.  Her eye was swollen again, and she was crying a lot.  When we woke up (a year ago today) I called her pediatrician and we got in asap.  It seems like we were there forever, but eventually they decided that Children’s Hospital was the way to go.  At this point, we had been to the doctors maybe 8 times in the previous month, presenting with SO MANY differnet symptoms and no one had a clue.  The doctor was afraid that we were missing something, that maybe she had something more serious.

 

For the next several days, J-bo would undergo x-rays, have her blood drawn far too often, see specialist after specialist.  She saw ortho, she saw infectious disease. She saw hematology and oncology…

I would stay with her the whole time, even in my largeness, sleeping on the window seat next to my daughter.  My husband would lose his job over this, even if only for a month or two…(stupid cock sucker of a boss…)

Our world would turn upside down.  Our fate unknown…

 

 

I visited my dad in the hospital yesterday.  He looked much better than expected.  His lips were swolen from the sores, but they were healing. 

The hardest part about this is that my dad is so depressed.  It’s not a lot of fun seeing your father cry.  I really can’t believe how I managed to hold it together that day… but I guess I’ll pay for it after the fact with some random crying here and there.